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5 Ways COVID-19 Has Changed The Game For ALS Patients And Caregivers
Amid setbacks and letdowns, the ALS community is leaning on its resilience and finding hope.
ALS Advocacy in Business
An Interview with Steven Prevost. SimpliHere has teamed up with Joe’s Brother Coffee owner and founder Steven Prevost to bring you the following interview, where we talk Steven’s connection to ALS, why he started roasting coffee, and organizations doing the important work for ALS advocacy and research. MM (00:06): Good afternoon. Just to introduce myself […]
Black History Month & the Neuroscience Community
Every February, we remember, learn, reflect upon, and celebrate Black history. This Black History Month, SimpliHere would like to specifically highlight Black groups and individuals making a difference in the neuroscience and neurodegenerative disease community that ALS is a part of. 1. African Ancestry Neuroscience Research Initiative The nation’s first African Ancestry Neuroscience Research Initiative […]
Great News! Congress Passed the ALS Disability Insurance Access Act
Last week, both the Senate and the U.S. House of Representatives passed the ALS Disability Insurance Access Act. This news marks a tremendous milestone for the ALS community. The legislation eliminates a mandatory five-month waiting period that up to this point has been in place for people with medically-determined ALS to receive Social Security Disability Insurance (SSDI). Imagine that you have been […]
2020 ALS Advocacy Conference Debrief (Part 2)
This year’s ALS Advocacy Conference, put on by the ALS Association, looked a bit different in 2020 over computer screens and Zoom links, as did everything else this year. But as the resounding rally cry of the conference went, “ALS does not stop, and neither can we.” Many things have been postponed or cancelled this […]
2020 ALS Advocacy Conference Debrief (Part 1)
Did you miss the 2020 Virtual ALS Advocacy Conference? Here’s a breakdown of the conference sessions to help you catch up, stay informed, and advocate on your time!
Raise Your Voice: Staying At Home Doesn’t Stop ALS Advocates
“Lou Gherig was diagnosed 80 years ago,” Christa Thompson reminds us, “and his doctors essentially had the same story to tell him that my husband’s doctor told us.”
It’s Your Smile. Don’t Let ALS Take It Away
Jeremy Van Tress’ ALS story.
Top 7 Digital Augmentative And Alternative Communication Tools For ALS Patients
Gone are the days of relying on hand gestures and a white board.
Love Conquers All: 5 Game-Changing Organizations In The ALS Community
“The mission of SimpliHere is to help patients and families impacted by neurodegenerative diseases such as ALS preserve their ability to communicate, cope, and stay connected to the wider community.” During her mother’s battle with ALS, our founder Joanna Rosenberg saw first-hand how easily it is for ALS patients to lose touch with their immediate […]
You’ve Got This: 5 More Tips For Caregivers
When you’re deep in the trenches of ALS, your perspective is thrown all out of whack. You’re doing everything you can to keep your PAL happy and comfortable, you’re worrying if you’re doing more harm than good, and half the time you’re making it up as you go along (because, let’s face it, ALS throws […]