ALS Patient and Caregiver Survey

In an effort to develop a service to help ALS patients and their caregivers navigate the challenges of communicating,  we are gathering input from members of the community such as yourself. This short set of survey questions will help us determine the types of capabilities and resources that would be helpful to you, your family, or your patients. We invite you to complete the survey as well as share it out to anyone you know who would be interested in providing input.  We thank you for sharing your thoughts and hope to develop a service that will be helpful to as many people as possible!

Please select the choice which best describes you. *
How recently were you or the patient you support diagnosed with ALS? *
What methods do you use to help you communicate? Select all that apply.
If you use (or are considering) an app to communicate, which features do you use or would like to use? *
Who is active in your support network? *
Would you be interested in participating in future surveys? *