Across the United States, there are many engaging events and campaigns happening throughout the month of May, ALS Awareness Month. The one SimpliHere is most excited about is the virtual Fight ALS Film Festival. The month-long film fest, which is free and open to the public, was founded by Sunny Brous, who was diagnosed […]
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Calling all Testers!! SimpliHere is seeking volunteers for mobile app testing for next product version
SimpliHere is currently seeking volunteers for mobile app testing for a new, improved version of our product! To test our user experience and design, we are looking to recruit several ALS community participants for 45-minute one-on-one sessions online throughout the month of April. These usability tests will be hosted by trained user experience designers and […]
Hope on the Horizon for ALS Patients: New drug trial results expected in 2022
As ALS patients, caregivers, and families of ALS patients know too well, there are not enough FDA-approved drugs for the treatment of this disease. In fact, there are currently only two pharmaceutical therapies available to patients in the United States: generic riluzole, approved by the FDA in 1995, which modestly extends survival, and Mitsubishi Tanabe […]
New Year and New Opportunities for ALS Therapies
December 23, 2021, President Biden signed the Accelerating Access to Critical Therapies for ALS Act, known as ACT for ALS
Cheat-Sheet: Our Top 7 Digital Augmentative and Alternative Communication Apps for ALS Patients
Throughout the COVID-19 pandemic, the world quickly adopted and adapted to video conferencing, smartphone apps, and other technology advances in order to communicate. To keep pace, there has been an explosion in app, device, and software development and users encounter never-ending updates to commonly used platforms. The virtual working world has moved from surviving to […]
Three ALS Caregiver Resources to be Thankful For
This month, we’re sharing three outstanding ALS caregiver resources – Your ALS Guide, Sarah’s Caregiver Community, and I AM ALS -that we are thankful for and that you need to know about. Your ALS GuideThis practical, easy-to-navigate website and Facebook community was designed for patients, family members, caregivers, and friends to answer questions, connect them […]
ALS family support—a conversation with Hope Loves Company
Of the 30,000 Americans diagnosed with ALS each year, 85% of them have a child or grandchild. Hope Loves Company, founded in 2012, is the only nonprofit in the U.S. dedicated to providing emotional and educational support to children and young adults who have or had a loved one battling ALS. Founder Jodi O’Donnell-Ames lost her first husband to […]
The ALS & MS Walk for Living Supporting The Leonard Florence Center Returns for 2021
Due to the threat of the ongoing COVID-19 pandemic, this year, the 13th annual ALS & MS Walk for Living will be held virtually on Sunday, October 17. SimpliHere connected with Maura Graham, director of Walk for Living, to learn more about this meaningful and beloved event.
The ALS Therapy Development Institute Leads The Charge In Clinical Research & Treatment Development
The ALSTDI, a nonprofit biotech research institute in Watertown, MA, is constantly testing potential ALS treatments and pushing them through their pipeline like time is of the essence. And it is.
SimpliTip Roundup: 10 Ways To Simplify Life With ALS
If you follow SimpliHere on social media, you may have seen our weekly posts with tips for making life with ALS as easy as possible. We call them SimpliTips, and we’ve been sharing them every Tuesday for several months. As much as we love SimpliTips, we’re going to hit pause on them for a minute […]
June 2nd Is Lou Gehrig Day! Here’s Why We’re Inspired By His Wife, Eleanor
First Lady of the Yankees, ALS Caregiver, and Advocacy Icon.
5 Ways COVID-19 Has Changed The Game For ALS Patients And Caregivers
Amid setbacks and letdowns, the ALS community is leaning on its resilience and finding hope.
