At SimpliHere, we wanted to share some inspiration today… A new film, “Go On, Be Brave,” is about Andrea Lytle Peet’s race against time. After her ALS diagnosis, Peet, a lifelong athlete and triathlete, decided to attempt the impossible — she set a goal to become the first person with ALS to compete a marathon […]
Blog
Cheat-Sheet 2023: Our Top 7 Digital Augmentative and Alternative Communication Apps for ALS Patients
There’s an app for that… There is a vast world of communication apps and digital tools out there—a world that evolves and changes every day. Many of these tools and applications are specifically designed for caregivers, patients with neurodegenerative conditions like ALS, and their families. At SimpliHere, we strive to help you make the most […]
Interview with Neurologist Dr. Doreen Ho of the Healey Center for ALS
Dr. Doreen Ho is a renowned neurologist who cares for patients with ALS while simultaneously conducting groundbreaking research to find therapies and cures. We caught her during a break in the action in her role at the Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital to ask about her path into […]
How To Navigate Increased Demand: Caregivers and the State of Home Health Care in 2022
November is National Caregivers Month. To honor the incredible people who dedicate their careers and lives to caring for others, SimpliHere is looking carefully at the current state of caregiving and home health care in the United States in 2022. Here are some things we’ve found. Emerging from the global Covid-19 pandemic, a great deal […]
Hey, professional caregivers — A $50 Amazon gift card for your thoughts?
This fall, SimpliHere is looking to speak with 10 professional caregivers or their managers— Home Health Aides, Personal Care Assistants, etc. (employed by home healthcare agencies) — who are willing to share their thoughts in exchange for a $50 Amazon gift card. If you are a professional caregiver or manage the operation of a home […]
Celebrate the Return of the 2022 ALS Walk for Living for the Leonard Florence Center!
On September 18, our friends at the Leonard Florence Center for Living in Chelsea, MA are hosting their annual ALS Walk for Living, a community celebration and fundraising event that takes place on Admiral’s Hill in Chelsea. The walk covers a two-mile course that is accessible to participants with wheelchairs and assistive devices, and that […]
Pick your favorite baseball team for Lou Gehrig Day 2022!
June 2, 2022 marks the second annual Lou Gehrig Day to honor the baseball legend and continue to spread awareness of ALS.
ALS Awareness Month Features Fight ALS Film Fest!
Across the United States, there are many engaging events and campaigns happening throughout the month of May, ALS Awareness Month. The one SimpliHere is most excited about is the virtual Fight ALS Film Festival. The month-long film fest, which is free and open to the public, was founded by Sunny Brous, who was diagnosed […]
Calling all Testers!! SimpliHere is seeking volunteers for mobile app testing for next product version
SimpliHere is currently seeking volunteers for mobile app testing for a new, improved version of our product! To test our user experience and design, we are looking to recruit several ALS community participants for 45-minute one-on-one sessions online throughout the month of April. These usability tests will be hosted by trained user experience designers and […]
Hope on the Horizon for ALS Patients: New drug trial results expected in 2022
As ALS patients, caregivers, and families of ALS patients know too well, there are not enough FDA-approved drugs for the treatment of this disease. In fact, there are currently only two pharmaceutical therapies available to patients in the United States: generic riluzole, approved by the FDA in 1995, which modestly extends survival, and Mitsubishi Tanabe […]
New Year and New Opportunities for ALS Therapies
December 23, 2021, President Biden signed the Accelerating Access to Critical Therapies for ALS Act, known as ACT for ALS
Cheat-Sheet: Our Top 7 Digital Augmentative and Alternative Communication Apps for ALS Patients
Throughout the COVID-19 pandemic, the world quickly adopted and adapted to video conferencing, smartphone apps, and other technology advances in order to communicate. To keep pace, there has been an explosion in app, device, and software development and users encounter never-ending updates to commonly used platforms. The virtual working world has moved from surviving to […]
