This month, we’re sharing three outstanding ALS caregiver resources – Your ALS Guide, Sarah’s Caregiver Community, and I AM ALS -that we are thankful for and that you need to know about. Your ALS GuideThis practical, easy-to-navigate website and Facebook community was designed for patients, family members, caregivers, and friends to answer questions, connect them […]
Blog
ALS family support—a conversation with Hope Loves Company
Of the 30,000 Americans diagnosed with ALS each year, 85% of them have a child or grandchild. Hope Loves Company, founded in 2012, is the only nonprofit in the U.S. dedicated to providing emotional and educational support to children and young adults who have or had a loved one battling ALS. Founder Jodi O’Donnell-Ames lost her first husband to […]
The ALS & MS Walk for Living Supporting The Leonard Florence Center Returns for 2021
Due to the threat of the ongoing COVID-19 pandemic, this year, the 13th annual ALS & MS Walk for Living will be held virtually on Sunday, October 17. SimpliHere connected with Maura Graham, director of Walk for Living, to learn more about this meaningful and beloved event.
The ALS Therapy Development Institute Leads The Charge In Clinical Research & Treatment Development
The ALSTDI, a nonprofit biotech research institute in Watertown, MA, is constantly testing potential ALS treatments and pushing them through their pipeline like time is of the essence. And it is.
SimpliTip Roundup: 10 Ways To Simplify Life With ALS
If you follow SimpliHere on social media, you may have seen our weekly posts with tips for making life with ALS as easy as possible. We call them SimpliTips, and we’ve been sharing them every Tuesday for several months. As much as we love SimpliTips, we’re going to hit pause on them for a minute […]
June 2nd Is Lou Gehrig Day! Here’s Why We’re Inspired By His Wife, Eleanor
First Lady of the Yankees, ALS Caregiver, and Advocacy Icon.
5 Ways COVID-19 Has Changed The Game For ALS Patients And Caregivers
Amid setbacks and letdowns, the ALS community is leaning on its resilience and finding hope.
ALS Advocacy in Business
An Interview with Steven Prevost. SimpliHere has teamed up with Joe’s Brother Coffee owner and founder Steven Prevost to bring you the following interview, where we talk Steven’s connection to ALS, why he started roasting coffee, and organizations doing the important work for ALS advocacy and research. MM (00:06): Good afternoon. Just to introduce myself […]
Black History Month & the Neuroscience Community
Every February, we remember, learn, reflect upon, and celebrate Black history. This Black History Month, SimpliHere would like to specifically highlight Black groups and individuals making a difference in the neuroscience and neurodegenerative disease community that ALS is a part of. 1. African Ancestry Neuroscience Research Initiative The nation’s first African Ancestry Neuroscience Research Initiative […]
Great News! Congress Passed the ALS Disability Insurance Access Act
Last week, both the Senate and the U.S. House of Representatives passed the ALS Disability Insurance Access Act. This news marks a tremendous milestone for the ALS community. The legislation eliminates a mandatory five-month waiting period that up to this point has been in place for people with medically-determined ALS to receive Social Security Disability Insurance (SSDI). Imagine that you have been […]
2020 ALS Advocacy Conference Debrief (Part 2)
This year’s ALS Advocacy Conference, put on by the ALS Association, looked a bit different in 2020 over computer screens and Zoom links, as did everything else this year. But as the resounding rally cry of the conference went, “ALS does not stop, and neither can we.” Many things have been postponed or cancelled this […]
2020 ALS Advocacy Conference Debrief (Part 1)
Did you miss the 2020 Virtual ALS Advocacy Conference? Here’s a breakdown of the conference sessions to help you catch up, stay informed, and advocate on your time!
