Amid setbacks and letdowns, the ALS community is leaning on its resilience and finding hope.
An Interview with Steven Prevost. SimpliHere has teamed up with Joe’s Brother Coffee owner and founder Steven Prevost to bring you the following interview, where we talk Steven’s connection to ALS, why he started roasting coffee, and organizations doing the important work for ALS advocacy and research. MM (00:06): Good afternoon. Just to introduce myself […]
Every February, we remember, learn, reflect upon, and celebrate Black history. This Black History Month, SimpliHere would like to specifically highlight Black groups and individuals making a difference in the neuroscience and neurodegenerative disease community that ALS is a part of. 1. African Ancestry Neuroscience Research Initiative The nation’s first African Ancestry Neuroscience Research Initiative […]
Last week, both the Senate and the U.S. House of Representatives passed the ALS Disability Insurance Access Act. This news marks a tremendous milestone for the ALS community. The legislation eliminates a mandatory five-month waiting period that up to this point has been in place for people with medically-determined ALS to receive Social Security Disability Insurance (SSDI). Imagine that you have been […]
This year’s ALS Advocacy Conference, put on by the ALS Association, looked a bit different in 2020 over computer screens and Zoom links, as did everything else this year. But as the resounding rally cry of the conference went, “ALS does not stop, and neither can we.” Many things have been postponed or cancelled this […]
Did you miss the 2020 Virtual ALS Advocacy Conference? Here’s a breakdown of the conference sessions to help you catch up, stay informed, and advocate on your time!
SimpliHere founder Joanna has lived the challenges ALS patients and caregivers experience on a daily basis. So she created a tool to help.
“Lou Gherig was diagnosed 80 years ago,” Christa Thompson reminds us, “and his doctors essentially had the same story to tell him that my husband’s doctor told us.”
“The hereditary chart of our family would boggle your mind. It’s filled with heartache and pain and sorrow. But there’s also support. And there’s good parts of the story, too.”
Jeremy Van Tress’ ALS story.
One ALS Patient Finds Hope In Family And Research Data
Anyone who thinks being diagnosed with a terminal illness means their life is over needs to meet Sunny Erasmus.