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SimpliHere – Simplifying caregiving for those impacted by ALS and other neurodegenerative diseases.

SimpliHere - Simplifying caregiving for those impacted by ALS and other neurodegenerative diseases.

Simplifying caregiving for those impacted by ALS and other neurodegenerative diseases.

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Black History Month & the Neuroscience Community

February 22, 2021 By Mindy Mayden Leave a Comment

Every February, we remember, learn, reflect upon, and celebrate Black history. This Black History Month, SimpliHere would like to specifically highlight Black groups and individuals making a difference in the neuroscience and neurodegenerative disease community that ALS is a part of.  1. African Ancestry Neuroscience Research Initiative The nation’s first African Ancestry Neuroscience Research Initiative […]

Filed Under: Uncategorized Tagged With: Black excellence, Black History Month, Black in neuroscience, Neuroscience, Neuroscience research

Great News! Congress Passed the ALS Disability Insurance Access Act

December 15, 2020 By joannarosenberg

Last week, both the Senate and the U.S. House of Representatives passed the ALS Disability Insurance Access Act. This news marks a tremendous milestone for the ALS community. The legislation eliminates a mandatory five-month waiting period that up to this point has been in place for people with medically-determined ALS to receive Social Security Disability Insurance (SSDI). Imagine that you have been […]

Filed Under: Uncategorized Tagged With: ALS, ALS Disability Insurance Access Act, ALS insurance access, Congress, Medical advocacy

2020 ALS Advocacy Conference Debrief (Part 2)

December 4, 2020 By Mindy Mayden

This year’s ALS Advocacy Conference, put on by the ALS Association, looked a bit different in 2020 over computer screens and Zoom links, as did everything else this year. But as the resounding rally cry of the conference went, “ALS does not stop, and neither can we.” Many things have been postponed or cancelled this […]

Filed Under: Advocacy, Blog, Uncategorized Tagged With: ALS, ALS Advocacy, Clinical trials, Medical advocacy, Medical research

2020 ALS Advocacy Conference Debrief (Part 1)

August 13, 2020 By Emma Comery

Did you miss the 2020 Virtual ALS Advocacy Conference? Here’s a breakdown of the conference sessions to help you catch up, stay informed, and advocate on your time!

Filed Under: Uncategorized, Blog Tagged With: Advocacy, ALS, Capitol Hill, Government, Healthcare, Legislation

Meet Louise: Your Personal ALS Voice Assistant

July 7, 2020 By Emma Comery

SimpliHere founder Joanna has lived the challenges ALS patients and caregivers experience on a daily basis. So she created a tool to help.

Filed Under: Blog Tagged With: ALS, Communication, Patient, Personal Assistant, Voice-activated

Raise Your Voice: Staying At Home Doesn’t Stop ALS Advocates

July 2, 2020 By Emma Comery

“Lou Gherig was diagnosed 80 years ago,” Christa Thompson reminds us, “and his doctors essentially had the same story to tell him that my husband’s doctor told us.”

Filed Under: Uncategorized, Blog

Inheriting ALS: An Intimate Look At The Reality Of Familial ALS

May 5, 2020 By Emma Comery

“The hereditary chart of our family would boggle your mind. It’s filled with heartache and pain and sorrow. But there’s also support. And there’s good parts of the story, too.”

Filed Under: Blog Tagged With: ALS, Disease, Family, Inspirational Story, Neurodegenerative

It’s Your Smile. Don’t Let ALS Take It Away

February 21, 2020 By Emma Comery

Jeremy Van Tress’ ALS story.

Filed Under: Uncategorized, Blog

Strength In Numbers

November 5, 2019 By Emma Comery

ALS patient and advocate Ed Rapp

One ALS Patient Finds Hope In Family And Research Data

Filed Under: Blog Tagged With: ALS, Fundraising, Patient

#TalkALSToMe

September 2, 2019 By Emma Comery

Anyone who thinks being diagnosed with a terminal illness means their life is over needs to meet Sunny Erasmus.

Filed Under: Blog Tagged With: ALS

Boots On The Ground: ALS Care Specialist Juliet Pierce Offers A Look Into The World Of ALS Chapters

July 26, 2019 By joannarosenberg

Meet Cares Services Specialist and professional ALS warrior Juliet Pierce.

Filed Under: Blog

Top 7 Digital Augmentative And Alternative Communication Tools For ALS Patients

May 28, 2019 By joannarosenberg

Gone are the days of relying on hand gestures and a white board.

Filed Under: Blog, Uncategorized Tagged With: AAC, ALS, Apps, Communication, Technology

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SimpliHere Mission Statement

The mission of SimpliHere is to help patients and families navigate the debilitating challenges of ALS by helping them to communicate basic needs, easily reach caregivers, and share information with others affected by ALS.

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