Communities and Resources

Explore communities of understanding and inspiration and access valuable resources. Whether you are a family caregiver or a person living with a long-term condition we're here to help you find support.

Communities and Resources for Individuals and Families

ALS TDI (ALS Therapy Development Institute)
https://www.als.net

ALS Association
https://www.als.org

ALS Forums
https://www.alsforums.com

ALS in the Heartland
https://alsintheheartland.org

ALS News Today
https://alsnewstoday.com

ALS Society of Alberta
https://www.alsab.ca

Answer ALS
https://www.answerals.org

Compassionate Care ALS (CCALS)
https://ccals.org

Her ALS Story
https://heralsstory.org

Hope Loves Company
https://www.hopelovescompany.org

I AM ALS
https://www.iamals.org

International Alliance of ALS/MND Forums
https://www.als-mnd.org

Les Turner ALS Foundation
https://lesturnerals.org

Northeast ALS Consortium (NEALS)
https://neals.org

Facebook Group: ALS – Patient and Caregiver tips for every day living
https://www.facebook.com/groups/783085008445585

Your ALS Guide – Find a Clinic
https://www.youralsguide.com/als-clinics.html

Autism Communities
https://www.autismcommunities.org

Autism Society of America
https://autismsociety.org

Autism Speaks
https://www.autismspeaks.org

ASAN (Autistic Self Advocacy Network)
https://autisticadvocacy.org

Autism Spectrum News
https://autismspectrumnews.org

Facebook Group: Autism Parents Support Group
https://www.facebook.com/groups/autismparenting

Cerebral Palsy Foundation
https://www.yourcpf.org

Cerebral Palsy News Today
https://cerebralpalsynewstoday.com

International Cerebral Palsy Society
https://www.cpint.org

My Child at Cerebral Palsy Foundation
https://www.cerebralpalsy.org

United Cerebral Palsy
https://ucp.org

Facebook Group: Cerebral Palsy Worldwide
https://www.facebook.com/groups/cerebralpalsyworldwide

Above MS
abovems.com

Can Do Multiple Sclerosis
cando-ms.org

Multiple Sclerosis Foundation
msfocus.org

Multiple Sclerosis International Federation
msif.org

National Multiple Sclerosis Society
nationalmssociety.org

Facebook Group: Multiple Sclerosis Trust
facebook.com/groups/multiplesclerosistrust

Muscular Dystrophy Association
mda.org

Muscular Dystrophy Family Foundation
mdff.org

Parent Project Muscular Dystrophy
parentprojectmd.org

Society for Muscular Dystrophy Information International
uia.org

Facebook Group: Muscular Dystrophy Coalition
facebook.com/groups/1107117842672579

Facebook Group: Muscular Dystrophy Stories
facebook.com/groups/407682732628777

American Stroke Association
stroke.org

National Aphasia Association
aphasia.org

Stroke Recovery Foundation
strokerecoveryfoundation.org

The Aphasia Community
aphasia.com

World Stroke Organization
world-stroke.org

Facebook Group: Stroke Survivors
facebook.com/groups/1279876089193080

AARP
aarp.org/caregiving

Ability Tools (California Foundation for Independent Living Centers)
abilitytools.org/services/reuse-programs.php

American Association of Caregiving Youth
aacy.org

Family Caregiver Alliance
caregiver.org

Lorenzo’s House
lorenzoshouse.org

Northwest Access Fund
nwaccessfund.org/loan-closets

Rare Diseases
rarediseases.org

Supporting Child Caregivers
supportingchildcaregivers.org

Acapela Group Voice Banking
acapela-group.com/voices/voice-banking

ALS Clinic Advisor Locator – GeoALS
https://arcg.is/1z8qOy1

CereVoice Voice Banking
cereproc.com/en

ModelTalker Voice Banking
modeltalker.org

Team Gleason Speech Accessibility Project
teamgleason.org/speech-accessibility-project

VocalID Voice Banking
vocalid.ai

Communities and Resources for Organizations

ALS TDI (ALS Therapy Development Institute)
https://www.als.net

ALS Association
https://www.als.org

ALS Forums
https://www.alsforums.com

ALS in the Heartland
https://alsintheheartland.org

ALS News Today
https://alsnewstoday.com

ALS Society of Alberta
https://www.alsab.ca

Answer ALS
https://www.answerals.org

Compassionate Care ALS (CCALS)
https://ccals.org

Her ALS Story
https://heralsstory.org

Hope Loves Company
https://www.hopelovescompany.org

I AM ALS
https://www.iamals.org

International Alliance of ALS/MND Forums
https://www.als-mnd.org

Les Turner ALS Foundation
https://lesturnerals.org

Northeast ALS Consortium (NEALS)
https://neals.org

Facebook Group: ALS – Patient and Caregiver tips for every day living
https://www.facebook.com/groups/783085008445585

Your ALS Guide – Find a Clinic
https://www.youralsguide.com/als-clinics.html

Autism Communities
https://www.autismcommunities.org

Autism Society of America
https://autismsociety.org

Autism Speaks
https://www.autismspeaks.org

ASAN (Autistic Self Advocacy Network)
https://autisticadvocacy.org

Autism Spectrum News
https://autismspectrumnews.org

Facebook Group: Autism Parents Support Group
https://www.facebook.com/groups/autismparenting

Cerebral Palsy Foundation
https://www.yourcpf.org

Cerebral Palsy News Today
https://cerebralpalsynewstoday.com

International Cerebral Palsy Society
https://www.cpint.org

My Child at Cerebral Palsy Foundation
https://www.cerebralpalsy.org

United Cerebral Palsy
https://ucp.org

Facebook Group: Cerebral Palsy Worldwide
https://www.facebook.com/groups/cerebralpalsyworldwide

Above MS
abovems.com

Can Do Multiple Sclerosis
cando-ms.org

Multiple Sclerosis Foundation
msfocus.org

Multiple Sclerosis International Federation
msif.org

National Multiple Sclerosis Society
nationalmssociety.org

Facebook Group: Multiple Sclerosis Trust
facebook.com/groups/multiplesclerosistrust

Muscular Dystrophy Association
mda.org

Muscular Dystrophy Family Foundation
mdff.org

Parent Project Muscular Dystrophy
parentprojectmd.org

Society for Muscular Dystrophy Information International
uia.org

Facebook Group: Muscular Dystrophy Coalition
facebook.com/groups/1107117842672579

Facebook Group: Muscular Dystrophy Stories
facebook.com/groups/407682732628777

American Stroke Association
stroke.org

National Aphasia Association
aphasia.org

Stroke Recovery Foundation
strokerecoveryfoundation.org

The Aphasia Community
aphasia.com

World Stroke Organization
world-stroke.org

Facebook Group: Stroke Survivors
facebook.com/groups/1279876089193080

AARP
aarp.org/caregiving

Ability Tools (California Foundation for Independent Living Centers)
abilitytools.org/services/reuse-programs.php

American Association of Caregiving Youth
aacy.org

Family Caregiver Alliance
caregiver.org

Lorenzo’s House
lorenzoshouse.org

Northwest Access Fund
nwaccessfund.org/loan-closets

Rare Diseases
rarediseases.org

Supporting Child Caregivers
supportingchildcaregivers.org

Acapela Group Voice Banking
acapela-group.com/voices/voice-banking

ALS Clinic Advisor Locator – GeoALS
https://arcg.is/1z8qOy1

CereVoice Voice Banking
cereproc.com/en

ModelTalker Voice Banking
modeltalker.org

Team Gleason Speech Accessibility Project
teamgleason.org/speech-accessibility-project

VocalID Voice Banking
vocalid.ai

Massachusetts Assisted Living Guide
caring.com/senior-living/assisted-living/massachusetts

Homecare Alliance of Massachusetts
thinkhomecare.org

Massachusetts Assisted Living Association
mass-ala.org

National Center for Assisted Living
ahcancal.org

National Association for Home Care and Hospice
nahc.org

Home Care Association of America
hcaoa.org

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