This year’s ALS Advocacy Conference, put on by the ALS Association, looked a bit different in 2020 over computer screens and Zoom links, as did everything else this year. But as the resounding rally cry of the conference went, “ALS does not stop, and neither can we.” Many things have been postponed or cancelled this […]
Did you miss the 2020 Virtual ALS Advocacy Conference? Here’s a breakdown of the conference sessions to help you catch up, stay informed, and advocate on your time!
SimpliHere founder Joanna has lived the challenges ALS patients and caregivers experience on a daily basis. So she created a tool to help.
“Lou Gherig was diagnosed 80 years ago,” Christa Thompson reminds us, “and his doctors essentially had the same story to tell him that my husband’s doctor told us.”
“The hereditary chart of our family would boggle your mind. It’s filled with heartache and pain and sorrow. But there’s also support. And there’s good parts of the story, too.”
Jeremy Van Tress’ ALS story.
One ALS Patient Finds Hope In Family And Research Data
Anyone who thinks being diagnosed with a terminal illness means their life is over needs to meet Sunny Erasmus.
Meet Cares Services Specialist and professional ALS warrior Juliet Pierce.
Gone are the days of relying on hand gestures and a white board.
“The mission of SimpliHere is to help patients and families impacted by neurodegenerative diseases such as ALS preserve their ability to communicate, cope, and stay connected to the wider community.” During her mother’s battle with ALS, our founder Joanna Rosenberg saw first-hand how easily it is for ALS patients to lose touch with their immediate […]
With Black Friday under our belts, the holidays are rushing toward us like a team of reindeer, and 2019 isn’t far behind. The new year brings new goals, new resolutions, a crisp new wall calendar, and lots of political changes. As a result of the 2018 midterm elections, 100 women were voted into Congress, the […]