Join us as we honor the rare disease community on this Rare DIsease Day, 2024. Hello, SimpliHere community members, As you may know, each year we recognize February 28 as Rare Disease Day (but since 2024 is a leap year, this time it falls on the 29th), a day when we pause to recognize the […]
Advocacy
ALS Advocacy in Business
An Interview with Steven Prevost. SimpliHere has teamed up with Joe’s Brother Coffee owner and founder Steven Prevost to bring you the following interview, where we talk Steven’s connection to ALS, why he started roasting coffee, and organizations doing the important work for ALS advocacy and research. MM (00:06): Good afternoon. Just to introduce myself […]
2020 ALS Advocacy Conference Debrief (Part 2)
This year’s ALS Advocacy Conference, put on by the ALS Association, looked a bit different in 2020 over computer screens and Zoom links, as did everything else this year. But as the resounding rally cry of the conference went, “ALS does not stop, and neither can we.” Many things have been postponed or cancelled this […]