On September 18, our friends at the Leonard Florence Center for Living in Chelsea, MA are hosting their annual ALS Walk for Living, a community celebration and fundraising event that takes place on Admiral’s Hill in Chelsea. The walk covers a two-mile course that is accessible to participants with wheelchairs and assistive devices, and that […]
ALS Caregiver
Three ALS Caregiver Resources to be Thankful For
This month, we’re sharing three outstanding ALS caregiver resources – Your ALS Guide, Sarah’s Caregiver Community, and I AM ALS -that we are thankful for and that you need to know about. Your ALS GuideThis practical, easy-to-navigate website and Facebook community was designed for patients, family members, caregivers, and friends to answer questions, connect them […]
ALS family support—a conversation with Hope Loves Company
Of the 30,000 Americans diagnosed with ALS each year, 85% of them have a child or grandchild. Hope Loves Company, founded in 2012, is the only nonprofit in the U.S. dedicated to providing emotional and educational support to children and young adults who have or had a loved one battling ALS. Founder Jodi O’Donnell-Ames lost her first husband to […]
