Amid setbacks and letdowns, the ALS community is leaning on its resilience and finding hope.
ALS
Great News! Congress Passed the ALS Disability Insurance Access Act
Last week, both the Senate and the U.S. House of Representatives passed the ALS Disability Insurance Access Act. This news marks a tremendous milestone for the ALS community. The legislation eliminates a mandatory five-month waiting period that up to this point has been in place for people with medically-determined ALS to receive Social Security Disability Insurance (SSDI). Imagine that you have been […]
2020 ALS Advocacy Conference Debrief (Part 2)
This year’s ALS Advocacy Conference, put on by the ALS Association, looked a bit different in 2020 over computer screens and Zoom links, as did everything else this year. But as the resounding rally cry of the conference went, “ALS does not stop, and neither can we.” Many things have been postponed or cancelled this […]
2020 ALS Advocacy Conference Debrief (Part 1)
Did you miss the 2020 Virtual ALS Advocacy Conference? Here’s a breakdown of the conference sessions to help you catch up, stay informed, and advocate on your time!
Meet Louise: Your Personal ALS Voice Assistant
SimpliHere founder Joanna has lived the challenges ALS patients and caregivers experience on a daily basis. So she created a tool to help.
Inheriting ALS: An Intimate Look At The Reality Of Familial ALS
“The hereditary chart of our family would boggle your mind. It’s filled with heartache and pain and sorrow. But there’s also support. And there’s good parts of the story, too.”
Strength In Numbers
One ALS Patient Finds Hope In Family And Research Data
#TalkALSToMe
Anyone who thinks being diagnosed with a terminal illness means their life is over needs to meet Sunny Erasmus.
Top 7 Digital Augmentative And Alternative Communication Tools For ALS Patients
Gone are the days of relying on hand gestures and a white board.
