June 2, 2022 marks the second annual Lou Gehrig Day to honor the baseball legend and continue to spread awareness of ALS.
Across the United States, there are many engaging events and campaigns happening throughout the month of May, ALS Awareness Month. The one SimpliHere is most excited about is the virtual Fight ALS Film Festival. The month-long film fest, which is free and open to the public, was founded by Sunny Brous, who was diagnosed […]
Throughout the COVID-19 pandemic, the world quickly adopted and adapted to video conferencing, smartphone apps, and other technology advances in order to communicate. To keep pace, there has been an explosion in app, device, and software development and users encounter never-ending updates to commonly used platforms. The virtual working world has moved from surviving to […]
This month, we’re sharing three outstanding ALS caregiver resources – Your ALS Guide, Sarah’s Caregiver Community, and I AM ALS -that we are thankful for and that you need to know about. Your ALS GuideThis practical, easy-to-navigate website and Facebook community was designed for patients, family members, caregivers, and friends to answer questions, connect them […]
Of the 30,000 Americans diagnosed with ALS each year, 85% of them have a child or grandchild. Hope Loves Company, founded in 2012, is the only nonprofit in the U.S. dedicated to providing emotional and educational support to children and young adults who have or had a loved one battling ALS. Founder Jodi O’Donnell-Ames lost her first husband to […]
Due to the threat of the ongoing COVID-19 pandemic, this year, the 13th annual ALS & MS Walk for Living will be held virtually on Sunday, October 17. SimpliHere connected with Maura Graham, director of Walk for Living, to learn more about this meaningful and beloved event.
If you follow SimpliHere on social media, you may have seen our weekly posts with tips for making life with ALS as easy as possible. We call them SimpliTips, and we’ve been sharing them every Tuesday for several months. As much as we love SimpliTips, we’re going to hit pause on them for a minute […]
First Lady of the Yankees, ALS Caregiver, and Advocacy Icon.
Amid setbacks and letdowns, the ALS community is leaning on its resilience and finding hope.
Last week, both the Senate and the U.S. House of Representatives passed the ALS Disability Insurance Access Act. This news marks a tremendous milestone for the ALS community. The legislation eliminates a mandatory five-month waiting period that up to this point has been in place for people with medically-determined ALS to receive Social Security Disability Insurance (SSDI). Imagine that you have been […]
This year’s ALS Advocacy Conference, put on by the ALS Association, looked a bit different in 2020 over computer screens and Zoom links, as did everything else this year. But as the resounding rally cry of the conference went, “ALS does not stop, and neither can we.” Many things have been postponed or cancelled this […]
Did you miss the 2020 Virtual ALS Advocacy Conference? Here’s a breakdown of the conference sessions to help you catch up, stay informed, and advocate on your time!