During ALS Awareness Month, we interviewed Leah Stavenhagen who founded Her ALS Story. Hello, SimpliHere community members! It’s ALS Awareness Month, and although we’re dedicated to raising awareness of ALS and other diseases all year long, we thought this month-long awareness event is a great excuse to profile one of our favorite ALS warriors, Leah […]
ALS Awareness
Support Rare Disease Day February 29, 2024
Join us as we honor the rare disease community on this Rare DIsease Day, 2024. Hello, SimpliHere community members, As you may know, each year we recognize February 28 as Rare Disease Day (but since 2024 is a leap year, this time it falls on the 29th), a day when we pause to recognize the […]
Go On, Be Brave. An ALS diagnosis and a woman’s race against time.
At SimpliHere, we wanted to share some inspiration today… A new film, “Go On, Be Brave,” is about Andrea Lytle Peet’s race against time. After her ALS diagnosis, Peet, a lifelong athlete and triathlete, decided to attempt the impossible — she set a goal to become the first person with ALS to compete a marathon […]
Cheat-Sheet 2023: Our Top 7 Digital Augmentative and Alternative Communication Apps for ALS Patients
There’s an app for that… There is a vast world of communication apps and digital tools out there—a world that evolves and changes every day. Many of these tools and applications are specifically designed for caregivers, patients with neurodegenerative conditions like ALS, and their families. At SimpliHere, we strive to help you make the most […]
Interview with Neurologist Dr. Doreen Ho of the Healey Center for ALS
Dr. Doreen Ho is a renowned neurologist who cares for patients with ALS while simultaneously conducting groundbreaking research to find therapies and cures. We caught her during a break in the action in her role at the Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital to ask about her path into […]
Celebrate the Return of the 2022 ALS Walk for Living for the Leonard Florence Center!
On September 18, our friends at the Leonard Florence Center for Living in Chelsea, MA are hosting their annual ALS Walk for Living, a community celebration and fundraising event that takes place on Admiral’s Hill in Chelsea. The walk covers a two-mile course that is accessible to participants with wheelchairs and assistive devices, and that […]
Pick your favorite baseball team for Lou Gehrig Day 2022!
June 2, 2022 marks the second annual Lou Gehrig Day to honor the baseball legend and continue to spread awareness of ALS.
ALS Awareness Month Features Fight ALS Film Fest!
Across the United States, there are many engaging events and campaigns happening throughout the month of May, ALS Awareness Month. The one SimpliHere is most excited about is the virtual Fight ALS Film Festival. The month-long film fest, which is free and open to the public, was founded by Sunny Brous, who was diagnosed […]
Cheat-Sheet: Our Top 7 Digital Augmentative and Alternative Communication Apps for ALS Patients
Throughout the COVID-19 pandemic, the world quickly adopted and adapted to video conferencing, smartphone apps, and other technology advances in order to communicate. To keep pace, there has been an explosion in app, device, and software development and users encounter never-ending updates to commonly used platforms. The virtual working world has moved from surviving to […]
ALS family support—a conversation with Hope Loves Company
Of the 30,000 Americans diagnosed with ALS each year, 85% of them have a child or grandchild. Hope Loves Company, founded in 2012, is the only nonprofit in the U.S. dedicated to providing emotional and educational support to children and young adults who have or had a loved one battling ALS. Founder Jodi O’Donnell-Ames lost her first husband to […]
The ALS & MS Walk for Living Supporting The Leonard Florence Center Returns for 2021
Due to the threat of the ongoing COVID-19 pandemic, this year, the 13th annual ALS & MS Walk for Living will be held virtually on Sunday, October 17. SimpliHere connected with Maura Graham, director of Walk for Living, to learn more about this meaningful and beloved event.
June 2nd Is Lou Gehrig Day! Here’s Why We’re Inspired By His Wife, Eleanor
First Lady of the Yankees, ALS Caregiver, and Advocacy Icon.